Daily Management Tips
- Pace activities and take regular rest breaks. Understand your own capabilities and physical limitations.
- Avoid overheating and excessive fatigue
- Manage stress levels and maintain a positive outlook
- Inform doctors about MG before new medications
- For public transport, obtain a “May I have a seat please” lanyard/badge from passenger service centres at MRT stations, bus interchanges or TransitLink Ticket Offices.
- Monitor symptoms closely
Work, Family, and Pregnancy
Many people with MG:
- Continue working
- Raise families
- Live independently with medical support
MG-ADL Score
To monitor yourself, you may utilise the MG-ADL (MG Activities of Daily Living) scale. This assesses the impact of MG on your daily activities. It ranges from zero (normal) to 24 (the most severe).
To prevent a myasthenia gravis flare or crisis, it is essential to listen to your body, avoid exertion, and take prescribed medications as directed. Do not stop or reduce any medications without your doctor’s permission.
Support & Community (Singapore)
Myasthenia Gravis Support Group (Singapore)
It is common for patients with Myasthenia Gravis (MG) to feel negative emotions such as frustration, confusion, and anger due to their symptoms and the impact on their daily lives. However, managing these emotions is an important part of MG treatment, as it can help prevent relapses or flare-ups. Patients at public hospitals can request referrals to psychologists if they need support. Additionally, they can connect with other individuals with MG through support groups.
Patients and caregivers can contact:
- MG Support Group (NNI-linked)
- https://www.facebook.com/groups/myastheniagravissingapore
- Telegram support group: Myasthenia Gravis Singapore
Key Takeaways for Patients
- Many medications can worsen MG — always declare your condition
- Effective treatments are readily available in Singapore
- A polyclinic referral is the key step to receiving subsidised specialist care
- Early diagnosis and proper treatment greatly improve quality of life